Today is a day so cold that I cannot go outside.
Me in a powerchair out in this cold is the same as being bit by frost and ice.
But what do I want, oh yes, I truly would love to go outside in this.
Cause the sun are shining from a clear blue sky so I know how extremely fantastic it can be.
To go for a walk in snow, with sunshine, and a cold that is manageable, is magic.
Its those kinds of days when you see all nature sparkling like diamonds. The air are crystal clear, so clear that it sometimes is hurtful to breath. Hurtful in a good way. That sounds odd, but it’s the way it is.
So now I sit inside my house, looking at the sunshine and feel a bit irritated over not being able to go out.
Things like this are so frustrating for me. It’s the dark side of walking with a wheelchair.
Yes I say walking with a wheelchair, cause the wheels are my legs. They carry me around everywhere.
Life in wheelchair is a life with a lot of obstacle. But obstacles are there to overcome.
I have lived my life in a wheelchair for so so many years now. I can see the changes in being able to move around in the society. Its such a huge difference.
Its so much easier.
Still there are things like make life difficult. I don’t think people think about a obstacle that are over 10 cm can be like Mount Everest for me.
I understand that, and I deal with it.
Not everything can be adapted for people with disabilities. But a bit more would be so nice.
Small adjustment can create a miracle for me.
Its not only the environments that are hard to deal with. It’s the attitude from people that sometimes make me angry, sad, irritated.
I can take so so much. I usually don’t argue with people because I know its no good.
To teach people about disabilities requires diplomacy.
I see it as a part of being me to be there teacher in life when it come to things like this.
Bur for sure, I can explode inside.
Here in Sweden, we say “the drop that causes the beaker to overflow”. It happens, of course. Im just a human.
You know, you listen, you see, you eat the words, the preconceived notions. I take a lot of stupid actions from people that don’t understand better. But sometimes that “drop” are there.
I just have to tell the person acting stupid what I think about what they say or do.
Im good at it. I lowers my voice, I look them directly in there eyes and I just start to inform them about what their words or action do to me and others with disability.
I truly wish that I could have the strength to do this more. But its mentally draining and I feel like I don’t have that mental energy.
Isn’t it odd, here I sit, longing to go out in the cold weather. Not being to do it make me start thinking about things that have to do with being disabled.
I usually tell people,” I am disabled in my body, but not in my brain”.
I wish that people could learn that and stop treating anyone that aren’t ”normal” in a different way.
That goes for everybody.
Not only to treat people with disability with respect, to treat everyone with respect. Regardless of color of skin, gender, sexual orientation, young, old, religion. We are all different but so alike.
Respect is a word that people often don’t know what it is now days.
Respect is a word many people use in a wrong way.
You can often hear people say,” you have to respect me”, NO I don’t, respect is something you earn. Respect is something you give to older people just because they earn it.
Respect is to listen to others, to talk to others without shouting.
Respect is to tell the truth, (not as president nr 45 in USA).
To respect someone can help that person to grow, to get a better self-esteem, to respect others can be to learn how to deal with life.
Respect each other – Respect life